Parkinson’s Foundation

The Parkinson’s Foundation makes life better for people with Parkinson’s disease by improving care and advancing research toward a cure.

 

Description

New York, NY – EIN 131866796 parkinson.org

Parkinson’s disease is a neurodegenerative brain disorder. There is currently no cure, but there are many treatment options to manage symptoms.

We offer the community, resources and advice to support you and your family as you begin to build a better life with Parkinson’s.

Wiki

Parkinson's Foundation

Parkinson's Foundation
Parkinson's Foundation logo.svg
Logo
Founded1957; 63 years ago (1957)
FounderJeanne C. Levey; William Black
13-1866796
Legal status501(c)(3) Non-profit
FocusParkinson's disease research and resources [1]
HeadquartersMiami, Florida; New York City, New York
Howard Morgan
John L. Lehr
National Medical Director
Michael S. Okun, M.D.
Websiteparkinson.org

The Parkinson’s Foundation is a national organization whose mission is to make life better for people with Parkinson’s disease by improving care and advancing research toward a cure. The Parkinson’s Foundation was established in 2016 through the merger of the National Parkinson Foundation and the Parkinson’s Disease Foundation and has offices in Miami and New York City.

History

The Parkinson’s Disease Foundation (PDF) was founded by William Black, the founder of Chock full o'Nuts, in 1957. Black started the foundation after learning that his controller and close friend was diagnosed with Parkinson’s.[2][3] His widow, Page Morton Black, served as PDF’s chairman emeritus until her passing in July 2013.[4][5]

PDF had an advisory council of people who have PD,[6][7] and a program to advocate for participation in clinical trials.[8][9][10] It also had a help line for people with PD and their families.[11][12]

The National Parkinson Foundation (NPF) was also founded in 1957; it funded around $20 million in care, research and support services.[13] It was founded by Jeanne C. Levey, whose husband suffered from Parkinson's disease. Levey worked at the foundation until her death in 1979 at age 92.[14]

In 2019, The Parkinson's Foundation began offering free genetic testing to people who have PD through its program PDGENEration.[15]

Mergers, acquisitions, and partnerships

In August 2016, PDF and NPF merged to form the Parkison's Foundation.[16][17][18]

In October 2017, the Parkinson's Foundation acquired the Melvin Yahr International Parkinson's Disease Foundation.[19]

In January 2020, the Parkinson's Foundation partnered with Zelira Therapeutics to study the benefits of medical cannabis in PD patients.[20]

Network

The Parkinson’s Foundation Center of Excellence network consists of leading medical centers around the globe that deliver care to more than 100,000 people with Parkinson’s disease.[21] The Center of Excellence designation identifies institutions providing specialized Parkinson’s disease care.[22][23]

References

  1. ^ "[1]". Parkinson's Foundation. Guidestar. December 31, 2017.
  2. ^ Saxon, Wolfgang (March 8, 1983). "William Black, Founder and Head of Chock Full O' Nuts Corp., Dies". The New York Times.
  3. ^ "Education: Joy in Giving". Time Magazine. 18 January 1960. Retrieved 15 July 2013.
  4. ^ name="New Leadership">"Darien Business Leader Appointed Chair Of Parkinson's Disease Foundation Board". Hartford Courant. 22 June 2013. Retrieved 15 July 2013.
  5. ^ "Page Black Obituary". New York Times. 22 July 2013. Retrieved 25 July 2013.
  6. ^ Kunkle, Frederick (March 2016). "Take Action: For many patients and their families, advocacy is about helping themselves and others—and they say anyone can do it". Neurology Now. 12 (1): 24–26. doi:10.1097/01.NNN.0000480824.32028.d1.
  7. ^ Peters Smith, Barbara (18 July 2014). "A national voice for people with Parkinson's disease". Sarasota Herald-Tribune. Retrieved 14 October 2014.
  8. ^ Key, Jessica R. (14 February 2013). "Parkinson's disease affects Blacks, men". Indianapolis Recorder. Retrieved 23 April 2013.
  9. ^ Fleisher, Chris (January 30, 2012). "Bringing Patients' Voices Into Parkinson's Research". Valley News. Archived from the original on February 3, 2012.
  10. ^ Killeen, Wendy (3 October 2013). "Putting knowledge to work". The Boston Globe. Retrieved 4 November 2013.
  11. ^ Crane, Kristine (27 October 2014). "Do You Have Parkinson's Disease or a Parkinsonism?". U.S. News & World Report. Retrieved 6 January 2015.
  12. ^ Burbank, Linda (3 December 2014). "Traveler's Aide: Challenges of flying with Parkinson's". USA Today. Retrieved 6 January 2015.
  13. ^ Better Business Bureau Charity Review
  14. ^ "Steady Progress". University of Miami Medicine. University of Miami. Retrieved 27 February 2019.
  15. ^ "PDGENEration Will Offer Free Genetic Testing for Parkinson's Patients". Parkinson's News Today. 2019-08-22. Retrieved 2020-01-13.
  16. ^ "Press release: National Parkinson Foundation (NPF) and the Parkinson's Disease Foundation (PDF) Complete Merger to Form the Parkinson's Foundation". PR Newswire. National Parkinson Foundation. Retrieved 16 February 2017.
  17. ^ "Parkinson's Foundation, Inc". Guidestar. Retrieved 10 November 2018.
  18. ^ "Merger of Parkinson's support groups will better serve patients, chief executive says". Patient Daily. Retrieved 26 February 2019.
  19. ^ "Press Release: Parkinson's Foundation, Melvin Yahr Int'l Parkinson's Disease Foundation Merge". 2017-10-30.
  20. ^ "Parkinson's Foundation, Zelira Crafting Survey on Cannabis Use and Possible Benefits". Parkinsons' News Today. 31 January 2020.
  21. ^ "Parkinson's Foundation Florida". Scott Cooper Miami. 2019-09-28. Retrieved 2020-01-01.
  22. ^ "Cleveland Clinic named Center of Excellence in Parkinson's care". 2018-07-24.
  23. ^ "Parkinson's Foundation Adds 3 Centers of Excellence to Its Network". 2019-09-27.

External links

Further reading

Videos

IRS data by ProPublica Nonprofit Explorer


PARKINSONS FOUNDATION INC

NEW YORK, NY 10018-7867 | Tax-exempt since Feb. 1959
  • EIN: 13-1866796
  • Classification (NTEE)
    Specifically Named Diseases Research (Medical Research)
  • Nonprofit Tax Code Designation: 501(c)(3)
    Defined as: Organizations for any of the following purposes: religious, educational, charitable, scientific, literary, testing for public safety, fostering national or international amateur sports competition (as long as it doesn’t provide athletic facilities or equipment), or the prevention of cruelty to children or animals.
  • Donations to this organization are tax deductible.
Fiscal year ending

June 2019

Fiscal year ending June

2019

PDF

990
990-T

Full Text

990 (filed on Jan. 3, 2020)

Full Filing

Raw XML

990

Form 990 documents available

Extracted filing data is not available for this tax period, but Form 990 documents are available for download.

Fiscal year ending

June 2018

Fiscal year ending June

2018

PDF

990

Full Text

990 (filed on Dec. 7, 2018)

Full Filing

Raw XML

990

Total Revenue

$30,423,671

Total Functional Expenses $30,138,993
Net income $284,678
Notable sources of revenue Percent of total revenue
Contributions $30,516,996 Over 100%
Program services $0
Investment income $559,433 1.8%
Bond proceeds $0
Royalties $0
Rental property income $0
Net fundraising -$652,758
Sales of assets $0
Net inventory sales $0
Other revenue $0
Notable expenses Percent of total expenses
Executive compensation $2,663,388 8.8%
Professional fundraising fees $0
Other salaries and wages $4,979,082 16.5%
Other
Total Assets $35,563,601
Total Liabilities $11,726,388
Net Assets $23,837,213
Fiscal year ending

June 2017

Fiscal year ending June

2017

PDF

990

Total Revenue

$27,164,720

Total Functional Expenses $26,963,779
Net income $200,941
Notable sources of revenue Percent of total revenue
Contributions $27,318,113 Over 100%
Program services $0
Investment income $550,589 2.0%
Bond proceeds $0
Royalties $0
Rental property income $0
Net fundraising -$703,982
Sales of assets $0
Net inventory sales $0
Other revenue $0
Notable expenses Percent of total expenses
Executive compensation $3,402,134 12.6%
Professional fundraising fees $0
Other salaries and wages $3,438,772 12.8%
Other
Total Assets $31,002,741
Total Liabilities $7,649,392
Net Assets $23,353,349
Fiscal year ending

June 2016

Fiscal year ending June

2016

Total Revenue

$9,398,583

Total Functional Expenses $9,849,755
Net income -$451,172
Notable sources of revenue Percent of total revenue
Contributions $9,221,738 98.1%
Program services $0
Investment income $173,821 1.8%
Bond proceeds $0
Royalties $0
Rental property income $0
Net fundraising $0
Sales of assets $3,024 0.0%
Net inventory sales $0
Other revenue $0
Notable expenses Percent of total expenses
Executive compensation $298,245 3.0%
Professional fundraising fees $123,100 1.2%
Other salaries and wages $1,507,932 15.3%
Other
Total Assets $9,431,306
Total Liabilities $2,463,250
Net Assets $6,968,056
Fiscal year ending

June 2015

Fiscal year ending June

2015

PDF

990

Total Revenue

$9,401,986

Total Functional Expenses $9,352,026
Net income $49,960
Notable sources of revenue Percent of total revenue
Contributions $8,973,029 95.4%
Program services $0
Investment income $188,706 2.0%
Bond proceeds $0
Royalties $0
Rental property income $0
Net fundraising $0
Sales of assets $240,251 2.6%
Net inventory sales $0
Other revenue $0
Notable expenses Percent of total expenses
Executive compensation $296,000 3.2%
Professional fundraising fees $121,050 1.3%
Other salaries and wages $1,284,546 13.7%
Other
Total Assets $9,782,100
Total Liabilities $2,300,840
Net Assets $7,481,260
Fiscal year ending

June 2014

Fiscal year ending June

2014

PDF

990

Total Revenue

$7,794,472

Total Functional Expenses $10,218,850
Net income -$2,424,378
Notable sources of revenue Percent of total revenue
Contributions $7,215,389 92.6%
Program services $0
Investment income $213,115 2.7%
Bond proceeds $0
Royalties $0
Rental property income $0
Net fundraising $0
Sales of assets $365,968 4.7%
Net inventory sales $0
Other revenue $0
Notable expenses Percent of total expenses
Executive compensation $268,671 2.6%
Professional fundraising fees $120,050 1.2%
Other salaries and wages $1,268,213 12.4%
Other
Total Assets $10,761,557
Total Liabilities $3,165,864
Net Assets $7,595,693
Fiscal year ending

June 2013

Fiscal year ending June

2013

PDF

990

Total Revenue

$9,777,656

Total Functional Expenses $9,764,203
Net income $13,453
Notable sources of revenue Percent of total revenue
Contributions $9,151,358 93.6%
Program services $0
Investment income $232,858 2.4%
Bond proceeds $0
Royalties $0
Rental property income $0
Net fundraising $0
Sales of assets $393,440 4.0%
Net inventory sales $0
Other revenue $0
Notable expenses Percent of total expenses
Executive compensation $281,217 2.9%
Professional fundraising fees $125,780 1.3%
Other salaries and wages $1,285,404 13.2%
Other
Total Assets $11,858,650
Total Liabilities $2,466,067
Net Assets $9,392,583
Fiscal year ending

June 2012

Fiscal year ending June

2012

PDF

990

Total Revenue

$7,652,762

Total Functional Expenses $9,897,567
Net income -$2,244,805
Notable sources of revenue Percent of total revenue
Contributions $7,146,419 93.4%
Program services $0
Investment income $338,207 4.4%
Bond proceeds $0
Royalties $0
Rental property income $0
Net fundraising $0
Sales of assets $168,136 2.2%
Net inventory sales $0
Other revenue $0
Notable expenses Percent of total expenses
Executive compensation $261,252 2.6%
Professional fundraising fees $111,000 1.1%
Other salaries and wages $1,331,668 13.5%
Other
Total Assets $11,737,898
Total Liabilities $2,456,211
Net Assets $9,281,687
Fiscal year ending

June 2011

Fiscal year ending June

2011

PDF

990

Total Revenue

$10,024,407

Total Functional Expenses $9,517,820
Net income $506,587
Notable sources of revenue Percent of total revenue
Contributions $9,307,991 92.9%
Program services $0
Investment income $285,576 2.8%
Bond proceeds $0
Royalties $0
Rental property income $0
Net fundraising $0
Sales of assets $430,840 4.3%
Net inventory sales $0
Other revenue $0
Notable expenses Percent of total expenses
Executive compensation $275,902 2.9%
Professional fundraising fees $111,000 1.2%
Other salaries and wages $1,309,861 13.8%
Other
Total Assets $14,353,245
Total Liabilities $2,304,484
Net Assets $12,048,761
Fiscal year ending

June 2010

Fiscal year ending June

2010

PDF

990

Form 990 documents available

Extracted filing data is not available for this tax period, but Form 990 documents are available for download.

Fiscal year ending

June 2009

Fiscal year ending June

2009

PDF

990

Form 990 documents available

Extracted filing data is not available for this tax period, but Form 990 documents are available for download.

Fiscal year ending

June 2008

Fiscal year ending June

2008

PDF

990

Form 990 documents available

Extracted filing data is not available for this tax period, but Form 990 documents are available for download.

Fiscal year ending

June 2007

Fiscal year ending June

2007

PDF

990
990
990

Form 990 documents available

Extracted filing data is not available for this tax period, but Form 990 documents are available for download.

Fiscal year ending

June 2006

Fiscal year ending June

2006

PDF

990

Form 990 documents available

Extracted filing data is not available for this tax period, but Form 990 documents are available for download.

Fiscal year ending

June 2005

Fiscal year ending June

2005

PDF

990

Form 990 documents available

Extracted filing data is not available for this tax period, but Form 990 documents are available for download.

Fiscal year ending

June 2004

Fiscal year ending June

2004

PDF

990

Form 990 documents available

Extracted filing data is not available for this tax period, but Form 990 documents are available for download.

Fiscal year ending

June 2003

Fiscal year ending June

2003

PDF

990

Form 990 documents available

Extracted filing data is not available for this tax period, but Form 990 documents are available for download.

Fiscal year ending

June 2001

Fiscal year ending June

2001

PDF

990

Form 990 documents available

Extracted filing data is not available for this tax period, but Form 990 documents are available for download.


Last Updated: 2020-11-22 07:57